Your Voice Powers Our Pulse
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Artificial intelligence is rapidly becoming part of everyday life — including how people learn about health, manage Parkinson’s, communicate with healthcare providers, conduct research, and connect with support. But how is the Parkinson’s community actually using AI, and what opportunities or concerns does it create? Through the PD Avengers Community Pulse, we’re asking people with Parkinson’s, care partners, healthcare professionals, researchers, advocates, and Parkinson’s organizations to share their experiences, opinions, and expectations about AI. Your insights will help us better understand where AI is helping, where caution is needed, and what the Parkinson’s community wants from this evolving technology.
PD Avengers Community Pulse is an ongoing way for people across the global Parkinson’s community to tell us what they are experiencing, what matters most, and where action is needed.
It is open to everyone connected to Parkinson’s, including people with Parkinson’s, care partners, family and friends, healthcare professionals, movement disorder specialists, researchers, advocates, community leaders, and people working in Parkinson’s organizations and industry.
Getting started takes about five minutes. Complete our one-time onboarding survey and you’ll receive a unique six-digit Community Pulse Code.
Save your code. You’ll use it when you take part in future Pulse surveys. This allows us to understand how experiences, needs, and priorities change over time, without asking you to complete the same background questions again and again.
Throughout the year, Community Pulse will include short monthly surveys, regular check-ins, and deeper quarterly and annual surveys exploring the issues that matter most to our community.
By listening consistently, we can turn thousands of individual experiences into a clearer picture of what is happening across the Parkinson’s community. What we learn will help identify priorities, inform advocacy and research, guide action, and measure whether meaningful progress is actually being made.
Each month, we will publish three to five key takeaways from Community Pulse on this page. We will also report back on what happens next, including actions taken, issues raised with decision-makers, and ways the findings are being used.
If you take the time to share your experience with us, we believe you should also be able to see what we learned and what happened because you spoke up.
