Planning for Prevention of Parkinson’s
Join us at the Liberty Hotel in Boston, MA or online from Sunday, October 2nd to Monday, October 3rd to explore and help shape designs for the first therapeutic trials to pursue Parkinson's disease prevention. View the agenda updated with new advocacy, regulatory, and industry perspectives.
PD AVENGERS MEMBER SPOTLIGHT
When were you/loved one first diagnosed?
My name is Rob Warner and I was diagnosed with Early Onset Parkinson’s Disease in 2007 when I was 33 years old.
Why did you want to become a PD Avenger?
I can’t remember how I came across the book “Ending Parkinson’s Disease” but after reading it I wanted to March on Washington! Non-violently of course but I didn’t know how to do it. But when listening to Larry Gifford’s podcast, “When LIfe Gives You Parkinson’s” and hearing he had started the PD Avengers I knew I wanted to be a part of such an awesome organization whose main focus is to end Parkinson’s.
The Bill To End Parkinson’s
“The most comprehensive, boldest, widespread piece of legislation specific to Parkinson’s disease ever introduced in the history of the U.S. congress.” — Ted Thompson, SVP Public Policy, The Michael J. Fox Foundation
PD Avengers Assemble - July 2022
Updates on Paraquat Lawsuits, PMD Alliance’s “All In” Conference, the inaugural Improv for Parkinson’s Summit, Every Victory Counts guide now available in Canada thanks to a collaboration between Davis Phinney Foundation and Parkinson’s Canada and more.
Sit2Stand Challenge
The PD Avengers are challenging YOU to see how many sit2stands you can do in a minute on World Parkinson’s Day with our partners; Neuro Heroes, Parkinson’s Africa, U-Turn Parkinsons and Rock Steady Boxing
Open Letter to Director-General of World Health Organisation (WHO)
World Parkinson’s Day is on 11 April.
Today the United Nations and the WHO do not recognise it on their websites, calendars, official media releases, or social media channels.
We are humbly and respectfully requesting your support and formal recognition of World Parkinson’s Day on 11 April. We have included a media release and additional documents which may aid your participation through social media. Hopefully, we can spark a conversation to have World Parkinson’s Day formally recognised by the United Nations and the World Health Organization.
GLOBAL ALLIANCE TO END PARKINSON’S DISEASE LAUNCHES NEW SYMBOL FOR PARKINSON’S AWARENESS
More than 80 Parkinson’s disease organizations and thousands of advocates from 83 countries announce the launch of ‘The Spark,’ a new international symbol for Parkinson’s awareness, to increase conversation and public awareness around the world’s fastest growing neurological disease. The symbol will be promoted and shared around the world during World Parkinson’s Day on Monday, April 11, 2022.
