Planning for Prevention of Parkinson’s
Join us at the Liberty Hotel in Boston, MA or online from Sunday, October 2nd to Monday, October 3rd to explore and help shape designs for the first therapeutic trials to pursue Parkinson's disease prevention. View the agenda updated with new advocacy, regulatory, and industry perspectives.
PD AVENGERS MEMBER SPOTLIGHT
When were you/loved one first diagnosed?
My name is Rob Warner and I was diagnosed with Early Onset Parkinson’s Disease in 2007 when I was 33 years old.
Why did you want to become a PD Avenger?
I can’t remember how I came across the book “Ending Parkinson’s Disease” but after reading it I wanted to March on Washington! Non-violently of course but I didn’t know how to do it. But when listening to Larry Gifford’s podcast, “When LIfe Gives You Parkinson’s” and hearing he had started the PD Avengers I knew I wanted to be a part of such an awesome organization whose main focus is to end Parkinson’s.
The Bill To End Parkinson’s
“The most comprehensive, boldest, widespread piece of legislation specific to Parkinson’s disease ever introduced in the history of the U.S. congress.” — Ted Thompson, SVP Public Policy, The Michael J. Fox Foundation
PD Avengers Assemble - July 2022
Updates on Paraquat Lawsuits, PMD Alliance’s “All In” Conference, the inaugural Improv for Parkinson’s Summit, Every Victory Counts guide now available in Canada thanks to a collaboration between Davis Phinney Foundation and Parkinson’s Canada and more.
Sit2Stand Challenge
The PD Avengers are challenging YOU to see how many sit2stands you can do in a minute on World Parkinson’s Day with our partners; Neuro Heroes, Parkinson’s Africa, U-Turn Parkinsons and Rock Steady Boxing
Open Letter to Director-General of World Health Organisation (WHO)
World Parkinson’s Day is on 11 April.
Today the United Nations and the WHO do not recognise it on their websites, calendars, official media releases, or social media channels.
We are humbly and respectfully requesting your support and formal recognition of World Parkinson’s Day on 11 April. We have included a media release and additional documents which may aid your participation through social media. Hopefully, we can spark a conversation to have World Parkinson’s Day formally recognised by the United Nations and the World Health Organization.
GLOBAL ALLIANCE TO END PARKINSON’S DISEASE LAUNCHES NEW SYMBOL FOR PARKINSON’S AWARENESS
More than 80 Parkinson’s disease organizations and thousands of advocates from 83 countries announce the launch of ‘The Spark,’ a new international symbol for Parkinson’s awareness, to increase conversation and public awareness around the world’s fastest growing neurological disease. The symbol will be promoted and shared around the world during World Parkinson’s Day on Monday, April 11, 2022.
British colonel with Parkinson’s disease heads to West Africa to help battle the stigma of PD.
I’m Guy Deacon, a retired British Army Colonel on a mission to raise awareness about the realities of living with Parkinson’s disease both in the UK and Africa. I have already driven over five thousand miles from England to Sierra Leone crossing the snowy passes of the Atlas Mountains, the deserts of the Western Sahara and the sahel of Senegal to demonstrate that having Parkinson’s disease need not dominate my life. The challenge was significantly greater than I had foreseen but nothing compared to what is to come.
Your Experience, Our Inspiration
What do you ponder about which may just be the inspiration needed? No matter how quirky, off the radar or even boring and obvious it may seem to you, please send us a couple of paragraphs to let us know. We’ll collate the list, see if there are common threads and make sure that researchers and funders around the world get a copy.
Who knows where your simple ponderings may lead?
Help Inspire the World Parkinson’s Day Logo
You can help inspire a logo for World Parkinson’s Day which will be used around the world.
