PD Avengers
A Global Alliance to End Parkinson’s Disease
The Parkinson’s Plan: New York Times Best Seller
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Watch this important conversation with Dr. Ray Dorsey and Dr. Michael Okun; authors of The Parkinson’s Plan. Learn more at PDPlan.org. Dorsey and Okun are two of the world’s most published, read, cited, and well-known neurologists. Together they have educated hundreds of thousands of families affected by Parkinson’s, cared for ten thousand individuals with the disease, and trained hundreds of clinicians. They are the coauthors of Ending Parkinson’s Disease.
Miss the authors talk at Politics & Prose? Here it is!
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The National Plan to End Parkinson’s Act UPDATE
A landmark U.S. federal law signed into effect on July 2, 2024. It represents the first coordinated national strategy to prevent, treat, and ultimately cure Parkinson’s disease and related neurodegenerative disorders. The Act is named in honor of Dr. Emmanuel Bilirakis and Rep. Jennifer Wexton, both personally affected by Parkinson’s and progressive supranuclear palsy, respectively.
Milestone Status (as of Aug 2025)
Act Signed into Law âś… Completed (July 2024)
NIH/HHS Implementation Role âś… Established (early 2025)
Nomination Period for Council âś… Closed (April 2025)
Advisory Council Appointments In Progress
National Plan Drafting In Planning Stage
First Official Report due By July 2, 2026
TIMELAPSE
Living with Parkinson’s disease. This film shows the realities of the disease and how it affects people of all ages, day and night. But there is hope. Featuring Tim Hague Sr., Sheryl Hague, Allie Signorelli, Mike Signorelli, Judith Barrett and Dr. Michael Okun.
"Parkinson's is a 24-hour, around-the-clock disease. There is no off-switch." – Michael Okun, MD
In this animated film, three patients, two care partners, and a leading neurologist, Michael Okun, MD, share what helps people truly live well with Parkinson’s. Through candid conversations – with each other and with doctors – people can find ways to move forward and live their best lives. This film was made possible with funding from AbbVie.
UHURU
A film directed by Olz McCoy, co-produced with Natasha Fothergill‑Misbah, that explores life with Parkinson’s disease in Tanzania. It’s a powerful short documentary shot entirely in Swahili, focusing on three individuals grappling with the disease in a healthcare system with limited resources.
The film depicts how Parkinson’s symptoms are often misinterpreted as witchcraft or curses, leading to social exclusion or worse.
It shows the transformative impact of access to levodopa‑carbidopa, emphasizing how medication can restore mobility, dignity, and hope.
By filming in Swahili and focusing on local communities in Tanzania—particularly around Kilimanjaro—the film brings authenticity and relatability to its audience.