Parkinson’s National Day of Action
#WhereisthePDplan
This week marks TWO YEARS since the House first passed the National Plan to End Parkinson's Act bill with an overwhelming vote of 407-9. As you know, the Senate passed it unanimously in May 2024, and President Biden signed it into law on July 2, 2024. In the 17 months since, there has been no significant progress made known to the PD Community. We are tired of waiting and so we are asking the PD community to join in a patient-led Call to Action on Wednesday, Dec 10, 2025.
The action is simple: contact your member of Congress and ask for up update on the National Parkinson's Project (as it's now called) and to post about it on social media using the hashtag #whereisthePDplan To answer questions and provide some helpful talking points, PD advocate Allie Signorelli created a PDF and added it to her website here. Also attaching the PDF to this email. You can access social media scripts here.
Not Someday. Now. Parkinson’s Must End.
Join PD Avengers — Global Alliance to End Parkinson’s Disease
Lift voices. Fund science. Fix systems—because hope isn’t a plan. Action is.
Look Good. Do Good. End Parkinson’s.
Parkinson’s Is Exploding.
PD Avengers Medical Advisor Dr. Michael Okun
tells CNN Dr. Sanja Gupta Why.
Upcoming Connections & Conversations
Here are webinars and workshops in the PD Avengers Community, with new events each month. It’s a great chance to connect, learn, and share your story if you’re a caregiver or have Parkinson’s.
Why PD Avengers Matters
Parkinson’s is complex. Too often, people feel isolated, unheard, or underserved by systems that move too slowly.
At PD Avengers, we move faster—using collective action, compassionate storytelling, and relentless advocacy to spark real change.
Our patient-led roots mean we don’t just speak for the community; we rise with it.
